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Welcome to CCSVI Alliance!

Chronic Cerebrospinal Venous Insufficiency (CCSVI) is a newly documented vascular condition that may profoundly change the way we think about MS.

While we are just beginning to understand the link between CCSVI and MS, compelling new research supports further investigation.  This site addresses critical aspects of CCSVI, from theory to research to treatment, providing original analysis and discussion that should engage both newcomers and medical professionals alike.

For those just learning about CCSVI, we encourage you to begin in our Basics section for a pragmatic introduction to key aspects of CCSVI theory and treatment. For physicians, researchers, and patients looking for more sophisticated analysis, we hope you enjoy our Advanced Topics section, where all content has been reviewed and vetted by a world-class team of medical professionals whose expertise ranges from neurology to interventional radiology to imaging and physics.

We understand, however, that patient and physician interests run beyond pure research and hard facts. Accordingly, we have provided a dedicated section on Patient Perspectives, including patient experiences during and after CCSVI treatment, and questions and answers for potential patients. Our Helping Yourself section summarizes practical approaches to maintaining vascular health, as well as tips for talking to physicians about CCSVI.

Our aim is to provide MS patients, caregivers, and medical professionals with a definitive resource for learning (more) about CCSVI - the science, the process, and the patient experience. As more research emerges, replacing mysteries with data and speculations with fact, we will be here, objective and clear. Opening veins, opening minds. Let's get started!
- CCSVI Alliance

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CCSVI Alliance Educational Events:

"CCSVI – What Do We Need to Learn About the Vascular Component of Multiple Sclerosis?"

In October CCSVI Alliance hosted an educational event in Las Vegas with a multidisciplinary panel, including Dr. Michael Dake, Dr. Manish Mehta, Dr. Raymond Sheehan, Dr. John Oh, and David Utriainen, an imaging specialist.  The panel addressed a variety of topics related to CCSVI including recent research, the role of iron and blood flow, and the perspectives of patients and doctors.  There was also a substantial Q&A period.  We have broken the evening's presentations into the four following videos:

  • "Bridging the Gap between Patients and Doctors" by Dr. Raymond Shaheen

                          

  • "CCSVI Research" presented by Dr. Manish Mehta

                                                         

  • "Iron & Blood Flow" presented by David Utriainen

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    • "Q&A" with panelists Dr. Michael Dake, Dr. Manish Mehta, Dr. John Oh, Dr. Raymond Shaheen and David Utriainen

        

    For more videos on CCSVI see our "Video Gallery."

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    Featured Content

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    CCSVI Alliance Educational Event:

    2012 Doctors' Roundtable Discussion: CCSVI and MS
    Held on Tuesday, March 27, 2012 in San Francisco, California

    The 2012 Doctors' Roundtable Discussion was a tremendous success.  It featured presentations by Bulent Arslan, MD and Gary Siskin, MD, as well as a discussion between neurologists Jack Burks, MD and Douglas Goodin, MD which was moderated by Michael Dake, MD.  Recent CCSVI research and upcoming studies were reviewed. Panelists were called to the stage for the final hour of Q&A's.

    A video of the discussion will be posted on this site.  Meanwhile, we invite you to visit our Facebook page (see link below) and to explore other aspects of our site for further information about CCSVI.

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    CCSVI Alliance is a 501(c)(3) nonprofit corporation. While our work may be of interest to people worldwide, our focus is on CCSVI in the United States.
     

    Exclusive Interviews

    CCSVI Alliance conducted several interviews with leading medical professionals during ISNVD's 2nd annual Scientific Meeting.  These exclusive interviews are featured below:

    Dr. Zamboni's CCSVI Review of 2011

    Paolo Zamboni, MD, vascular surgeon and Director of the Vascular Diseases Center at the University of Ferrara, reviews the CCSVI research during 2011 and describes promising new developments for the future.

     

     

    An Interventioal Radiologist's Update on CCSVI

    Bulent Arslan, MD, Director of Interventional Radiology at Rush University Hospital, reviews developments in CCSVI over the past year and the need for further research.


    Neurologist and Interventional Radiologist Discuss CCSVI Research

    Neurologist Robert Fox, MD of the Cleveland Clinic and interventional radiologist Michael Dake, MD of Stanford Medical Center discuss recent CCSVI research.

     

     

    All these interviews were filmed at the 2nd Annual International Society for NeuroVascular Disease (ISNVD) Scientific Meeting in Orlando, Florida.  

    Find additional videos featuring Dr. Paolo Zamboni, Dr. Michael Dake, and others at the "Video Gallery".  This gallery can be found under "The Basics" section and "CCSVI Multimedia," together with a selection of CCSVI photos at the "Photo Gallery."