Who We Are
CCSVI Alliance promotes education and research about CCSVI and its relationship to Multiple Sclerosis (MS) by providing objective information to the MS community, supporting medical investigations of CCSVI, and
fostering collaboration among patients, advocates, and professionals.
CCSVI Alliance began with the efforts of individuals who are intimately familiar with both multiple sclerosis (MS) and CCSVI. We live it. Our levels of disability range from mild to severe; we are or have been on every pharmaceutical prescribed for MS; and we are active in dozens of organizations, websites, and blogs devoted to MS. Based on our personal experiences and the available scientific research, we became and we remain committed to the exploration of CCSVI.
CCSVI Alliance members are literally part of the investigation. Many of us have been intensively tested for CCSVI, including Magnetic Resonance Venograms (MRV), Doppler exams, Magnetic Resonance Imaging (MRI), Computed Tomography scans (CT), selective venograms, and Susceptibility Weighted Imaging (SWI). We have studied research and questioned medical experts. Some of us are awaiting further research before deciding on treatment. Others have “run out of wait” and have already undergone angioplasty or stent placement.
While a small group of patients and caregivers created this forward-thinking organization, CCSVI Alliance now includes scientific professionals from multiple disciplines as well as other interested individuals. CCSVI Alliance will continue to keep this website current with the latest research, emerging practices, and patient perspectives. In addition, we will attend conferences, speak with the medical and patient communities, help bring together patients and doctors, connect medical professionals with one another, and facilitate further research into CCSVI.
It is an exciting time for CCSVI and MS. Please join us in opening veins and opening minds.