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Privacy Policy

This Privacy Policy specifically applies to the CCSVI Alliance web sites: www.ccsvi.org and www.ccsvialliance.org. This policy was last updated 7/24/2010. If you have questions about CCSVI Alliance Privacy Policy, you can contact us via email at This email address is being protected from spambots. You need JavaScript enabled to view it. .

This policy explains our online information practices. By using the CCSVI Alliance websites – www.ccsvi.org and www.ccsvialliance.org – you are accepting the policies and practices described in this notice. Any future changes to the CCSVI Alliance websites will be recorded and reflected in this policy document.

  1. CCSVI Alliance Privacy Policy Statement

    CCSVI Alliance is committed to protecting the privacy of the users of our website. All information gathered by ccsvi.org and ccsvialliance.org is used either to ensure the effectiveness of the site or to reply to questions and requests submitted from users of the site.
    We do not share, rent, or sell any user information to any organization or entity.

    a) Automated System Generated and Gathered Information
    When you visit ccsvi.org, our hosted platform automatically records anonymous information such as the domain names, operating system, and the Web browser product you are using. This information is automatically sent to us by your web browser, as it is to all web sites that you visit.  This system-delivered and gathered information may be used to help us better manage our site (for example, for capacity planning), and to provide a better user experience (for example, by helping us understand what content is most visited). Note that information your browser automatically sends us does not specifically identify you in any way.

    b) Identifiable Information Submitted by Users to CCSVI Alliance

    • Donors
      All donor information submitted to CCSVI Alliance is kept strictly private. CCSVI Alliance does not rent, exchange, or sell donor lists to any organization or individual.

    • Patient & Family Information
      Any/all patient or family information submitted to CCSVI Alliance for any reason is kept strictly private and is not presently shared with any other organization, affiliate, association, or other entity except if and where required by law.

  2. Data Security
    CCSVI Alliance is committed to protecting your personal information. CCSVI Alliance uses industry standard system defenses such as firewalls and strong password protection. CCSVI Alliance does not presently use or maintain an SQL database or LDAP directory of patient information. CCSVI Alliance does not print and store hardcopies of personal information at any physical locations or facilities.

CCSVI Alliance reserves the right to change this policy at any time; this policy was last updated 7/24/2010



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