Welcome to CCSVI Alliance!
Our aim is to provide patients, caregivers, and medical professionals with a definitive resource for learning more about CCSVI - the science, the process, and the patient experience. As more research emerges, replacing mysteries with data and speculations with fact, we will be here, objective and clear. Opening veins, opening minds. Let's get started!
- Read Angelo's newest Patient Perspective about his MS and CCSVI treatment
- Visit "Other Neurological Diseases" to learn about connections between CCSVI, blood flow, and other neurological diseases
- Visit "CCSVI Treatment Aftercare" to learn how to help yourself after treatment, including questions to ask beforehand
- Purchase CCSVI Alliance t-shirts and buttons to raise awareness of CCSVI
2013 Doctors' Roundtable: Exploring CCSVI & CSF in Neurological Disease
CCSVI Alliance's 3rd Annual Satellite Symposia at the Society of Interventional Radiology* explored the connections between CCSVI and CSF in neurological disease. Leading medical and scientific professionals discussed current key questions and concerns related to CCSVI and CSF in neurological disease.
Question & Answer with Panel
Dr. Bulent Arslan moderates a Q&A session about CCSVI, its treatment and its connection to cerebrospinal fluid (CSF). Panel members include Dr. Meredith Englander, Dr. Salvatore Sclafani, Dr. Jerry Niedwiecki, and Dr. Scott Rosa.
Observations at the Cranio-Cervical Junction, CTE and Observations of CSF
Dr. Scott Rosa has been working as a chiropractic physician for over 25 years. During his years of observational study, he became aware of the pathological CNS damage due to disrupted cerebrospinal fluid flow and arterial/venous flow. In this presentation, Dr. Rosa refers briefly to his extensive research on the effect of acute and chronic trauma at the upper neck and lower skull, and presents his observations of the cranio-cervical junction, CTE, and the flow of cerebrospinal fluid.
Causes of Non-Response to Interventional Treatment of CCSVI
Dr. Salvatore Sclafani discusses possible causes of non-responses and early reoccurrence to interventional treatment of CCSVI. Dr. Sclafani treated his first CCSVI patient in 2009, and since then has dedicated his career to education and research about this syndrome. Dr. Sclafani is Emeritus Professor and former Chairman of Radiology at the State University of New York Downstate Medical School. He is also a founding member of the International Society of Neurovascular Disease (ISNVD).
What I Know About CCSVI
Meredith Englander, MD of the Albany Medical Center discusses what she knows about CCSVI. The Albany Medical Center has treated hundreds of patients for CCSVI. Hear Dr. Englander's observations from the last several years and why she thinks further research into CCSVI is important.
* This event was not considered part of the SIR 2013 Annual Scientific Meeting as planned by the SIR Annual Scientific Meeting Committee.
Find additional videos featuring Dr. Paolo Zamboni, Dr. Michael Dake, and others at the "Video Gallery". This gallery can be found under "The Basics" section and "CCSVI Multimedia," together with a selection of CCSVI photos at the "Photo Gallery."
CCSVI Alliance Interviews
Mr. Ray Crallé, nationally recognized physical therapist, covers the physiology and rehabilitation of two symptomatic challenges for people with MS – gait disturbance and balance. As CCSVI Alliance has noted in its Aftercare Section, physical activity is one of the long term strategies we suggest to maximize brain health. This recommendation has been confirmed by numerous research studies which validate that physical activity is good for the heart and the brain (Indiana University, BMC Neurology Journal, Physical Therapy). Ray Crallé, using therapy techniques developed by Margaret Rood and Sir Charles Sharrington, elicits responses through the nervous system versus concentrating on exercising muscles. In this interview, Mr Crallé discusses the physiology of spasticity and spastic plantar flexion (incorrectly termed foot drop in many MS patients), vestibular balance (which can have an effect on cerebral blood flow) and the bio-mechanics of gait disturbance. Before starting any type of new physical activity or therapy, please check with your healthcare provider.
Joan Beal, CCSVI Alliance board member, interviews ISNVD 2014 Conference keynote speaker, Dr. Paula Grammas, PhD. Dr. Grammas is Professor of Neurology - Texas Tech University and Executive Director of the Garrison Institute on Aging. She was recently appointed Director of the Texas Alzheimer's Research Consortium. Joan talks with Dr. Grammas about her research into the role of blood vessels and inflammation in neurological disease.
Dr. Paolo Zamboni discusses his new pilot study which looks at perfusion changes in the multiple sclerosis (MS) brain prior to and after successful venoplasty for CCSVI, utilizing SPECT and PET scans. His team also compares cerebral perfusion in MS to normal controls. Recorded at the ISNVD 2014 Conference - San Francisco.
Neurologist Dr. David Hubbard reviews the history and the future of the FDA-approved Hubbard Patient Registry for the treatment of CCSVI. Recorded at the ISNVD 2014 Conference - San Francisco.
Find additional videos at the "Video Gallery".